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Intellectual

Resource​ ​Description ​Web address
National Council on Intellectual Disability
Services provided: information to people with intellectual disability, their families, carers, advocates and service providers; policy advice, systemic advocacy, community education, and information provision and dissemination. Website provides information on services who provide diagnosis and assessment of a disability.
http://ncid.org.au
The NSW Council for Intellectual Disability (NSW CID)
A peak body representing the rights and interests of people with intellectual disability in NSW.
Centre for Disability Health (CDH)
Part of the department of Communities and Social inclusion (South Australia) has clinics specialising in services for people with intellectual disability and people with acquired brain injury, physical or neurological conditions.
Centre for Developmental Disability Health, Victoria (CDDHV)
An academic unit in the Department of General Practice, Primary Health at Monash University  funded by Vic Government Department of Human Services.  Providing information on health of people with intellectual and developmental disability.
Intellectual Disability Rights Service
A specialist legal advocacy service for people with intellectual disability in NSW. They work with and for people with intellectual disability to exercise and advance their rights.
www.idrs.org.au/
The  Centre for Developmental Disability Health (CDDH) Victoria 
Fact Sheets on topics and issues related to intellectual/ developmental Disability.
Queensland Centre for Intellectual and Developmental Disability
Information on health of people with intellectual and developmental disability. The Centre is part of the School of Medicine at the University of Queensland.
 
Centre for Disability Studies, Sydney
Affiliated with the Sydney Medical School and the Royal Rehabilitation Centre Sydney. Information on health and other issues for people with intellectual and other disability.
The NSW Developmental Disability Health Unit (DDHU) (aka. 'the clinic')
Part of the University of Sydney the Centre for Disability Studies (CDS) provides a consultant service for people with developmental disabilities, their family and support persons. It works in conjunction with the person's general practitioner to ensure access to high quality health care through a network of specialists and allied health personnel.
 
  
Other topics
 
Prader-Willi Syndrome Association
A self help group comprising people born with Prader-Willi Syndrome, parents, friends and interested professionals. The aim of this site is to provide accurate information on Prader-Willi Syndrome (PWS) and resources that are available.
www.pws.org.au
Down Syndrome NSW
A community based, not-for-profit association established by the families of people with Down syndrome. They provide support and information to people with Down syndrome, their families, service providers and the wider community.
The Fragile X Association of Australia
A non-profit organisation made up of family, friends, therapists, doctors and carers of people with Fragile X Syndrome. Supporting intervention, programs  research into Fragile X. Promoting awareness and education in relation to Fragile X through lectures, meetings, classes, conferences, seminars and the publication of booklets, reports and media releases, Advising and lobbying government and other agencies.
www.fragilex.org.au
SAKKS - Supporting Aussie Kids with Kabuki Syndrome
A registered not for profit charity who support families/caregivers who have a child with Kabuki Syndrome, provides information, external links to genetics departments and research as well as links to medical information and personal stories describing many of the challenges of coping with a child that has Kabuki Syndrome.
www.sakks.org
Tourette Syndrome Association of Australia
A non-profit organisation of people with TS, their families, health and education professionals and other interested  people. Disseminates educational materials in the fields of health care, education and welfare service, provides telephone counselling and operates support groups,  support parent advocacy and other services to help families cope. The association publishes a quarterly newsletter.
www.tourette.org.au
 
Key references for health professionals
 
Centre for Disability Studies
Health Care in People with Intellectual Disability: Guidelines for General Practitioners and other resource.
Health Assessments for People with an intellectual disability
Case studies and ready reference.
International Association for the Scientific Study of Intellectual Disabilities
Health guidelines for adults with an intellectual disability.
 
 
 
IASSID -The International Association for the Scientific Study of Intellectual Disabilities
An international and interdisciplinary scientific organisation that promotes worldwide research and exchange of information on intellectual disabilities.
http://www.iassid.org/
ASSID - The Australian Society for the Study of Intellectual Disability
Presents membership information, events details and recent research.
Journal of Intellectual & Developmental Disabilities
Journal of ASSID, formerly hosted by CDS.
http://www.informaworld.com/smpp/title~content=t713432019
ISAAC - The International Society for Augmentative and Alternative Communication
An organization devoted to advancing the field of Augmentative and Alternative Communication (AAC).
http://www.isaac-online.org/en/home.shtml
ARATA
An association whose purpose is to serve as a forum for issues in rehabilitation and assistive technology.
 
 
 
Journal of Applied Research in Intellectual Disabilities
International journal
http://www.wiley.com/bw/journal.asp?ref=1360-2322
The Tizard Centre
Part of the School of Social Policy, Sociology and Social Research at the University of Kent at Canterbury. One of the leading UK academic groups working in learning disability and community care. It focuses on the relationship between policy, management and practice and in bridging psychology, social policy and other related disciplines to help improve services for people with a disability.
www.kent.ac.uk/tizard/
Last Modified: 21/11/2016 4:14 PM